When rare becomes common : a teajectory in the world of adrenoleukodystrophy

The article deals with the story of a mother who lived the experience of having a child whit adrenoleukodystrophy in the middle of the process of emergence of an institution for the management of people with rare diseases in Brazil. The research design starts from the way rare diseases are constitut...

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Bibliographic Details

Main Authors:	Souza, Bruna Aline Stoél de, Carniel, Fagner
Format:	Online
Language:	Portuguese
Published:	Universidade Estadual de Campinas 2020
Subjects:	Anthropology of Health Abnormalities Disability Studies Rare Diseases Health Policies Antropología de la Salud Anormalidades Estudios sobre Discapacidad Enfermedades Raras Políticas de Salud Antropologia da saúde Estudos da deficiência Doenças raras Políticas de saúde
Online Access:	https://econtents.sbu.unicamp.br/inpec/index.php/tematicas/article/view/14169
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